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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Sadly, not me moving much but the hospital have been on the phone.
There is discussion over whether I need to be seen before my appt on the 15th March at rheumatology. they have a faxed copy of the bloods and the registrar wants to speak to the head chief before agreeing to see me. Why do I have to be "complex"???!
also the gp wants to see me, she is back from her hols and wants a once over.
I will ask her about the care needs.
Love
Jenni xhow to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 690
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Hi Jenni,
If you can be seen before the 15.3.10, I would go for it and don't see why this can't be arranged. Good idea to speak to your GP about your care needs as he/she can send an urgent referral to SS to request an increase in your care package. I still think it would be a good idea to request a comprehensive needs assessment, as your needs have clearly changed and require an urgent review.
Just remember you are not complex, but the damn disease is and the way it has impacted upon your life.
Love,
Barbara
XXXXXX
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Jenni Okay, it's a bummer of a disease, a hopeless system and often useless people working in it but at least there may be just a glimmer of hope here! Most certainly you need a complete review of everything ... your condition/s, your meds, your ongoing medical care and right now a full assessment of your care needs and those of your family. I think it's pretty awful, as poorly as you are, that you are having to sort out all this for yourself. Fortunately Jenni you are a strong lady with a constitution that will fight where others would give up. I hope now your own GP will set the ball rolling and get things in place with positive direction for the future. Thinking of you and hoping Gemma is settling well. Lyn x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hoping you can get seen early, Jenni, and that your GP can get a better care plan in place for you. Take care, Kathleen x
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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AAAAAAAAAAAAGH!
bloody hospital- my appt on 15th is to see a jnr registrar! Hopeless.
No bloody point at all.
Waited weeks
FURIOUShow to be a velvet bulldoser
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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red boots on!
now seeing consultant- TOMORROW
they had a cancellation.
Jenni xhow to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 1/7/2010 Posts: 441 Location: Bristol
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That's good news, Jenni!
Joanna
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Rank: Advanced Member
Groups: Registered
Joined: 12/6/2009
Posts: 81
Location: norfolk
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THANK GOD FOR THAT CANCELLATION !!!
Gentle hugs
Sue
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Jenni, hooray for cancellations!!! so glad you are being seen tomorrow. What use is a junior registrar??? He would still need someone to ok anything he wanted to do anyway!!! Hope it all goes well for you x BARBARA
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Great news Jenni! 
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Good luck tomorrow Jenni. Will be thinking about you, Lyn x
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Rank: Advanced Member  Groups: Registered
Joined: 1/5/2010 Posts: 89 Location: Mereworth, Kent
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Having been out of touch a couple of weeks, I am so sorry you are still having such a tough time. I do hope tomorrow is a useful consultation and you get some action. It is scary how important these precious appointments are.
An extra prayer for you tonight
Alison xxxxx
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 336
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Great news Jenni, I hope they can help. I do admire you can I borrow those red boots one day or perhaps you can let us know where we can get some. Good luck for tomorrow. Glenys x
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Rank: Advanced Member
Groups: Registered
Joined: 12/7/2009
Posts: 235
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Thats good news Jenni, I hope your appt goes well tomorrow!!!
Deb x
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 856
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good news Jenni fingers crossed for tomorrow
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 690
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Will be thinking of you tomorrow Jenni and hoping all goes well,
love
Barbara
XXXXXX
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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Good Luck for tomorrow Jenni x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Whooooo!
Many prayers for tomorrow Jenni!
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